EUROPEAN ORGANISATION FOR RARE DISEASES

Sector: Non-governmental organisations, platforms and networks and similarHQ: FRANCE

EU Lobbying Profiles

EUROPEAN ORGANISATION FOR RARE DISEASES

Register: EU_TRANSPARENCY_REGISTER

Declared Spend (Max)

€499,999

Regulatory Meetings

All pressing portfolio topics

Met with Laszlo Kristoffy (EU)

All pressing portfolio topics

Met with Jana Dabbelt (EU)

All pressing portfolio topics

Met with Olivér Várhelyi (EU)

Involvement of individual experts, including patients, taking part in joint clinical assessments and scientific consultations under the EU HTA Regulation, as well as capacity-building activities funded by the EU4Health

Met with Maya Matthews (EU)

Ongoing policy developments

Met with Jana Dabbelt (EU)

Ongoing policy developments

Met with Olivér Várhelyi (EU)

Ongoing policy developments

Met with Katri Teedumäe (EU)

Exchange of views on Cross-Border Healthcare and on patient organisations, EURORDIS and ERNs

Met with Donata Meroni (EU)

Exchange of views on the role of patient organizations with the European Reference Networks.

Met with Donata Meroni (EU)

Meeting with EURORDIS to discuss the Commission’s actions on rare diseases

Met with Karolina Herbout-Borczak (EU)

Government Procurement

No government procurement contracts found.

Executive Insider Trades

No executive insider trades reported.